Browsing Tag


Epilepsy and Wellbeing

There is a huge focus in the press these days on wellbeing, mindfulness and self-care. We are becoming more aware of the need to take care of ourselves but what about when you’re not able to? What if your wellbeing depends on the help of…

December 10, 2017

Dexter, Now you are 4

Dear Dexter, Last month you turned four years old. I think this has been the first year you’ve really understood that you were getting a bit older, or bigger, as you put it. We spent the day before your birthday at Wicksteed Park in…

July 12, 2017

Epilepsy diagnosis and the EEG.

If you’ve been reading along Dexters epilepsy journey so far you’ll know he recently had another fit after not having one since the start of August. After this most recent one, the consultant that we saw in A&E emailed all of the details to…

October 2, 2016

Dealing with Seizures – Epilepsy and Dexter

6 years ago this month, I lost my sister.  Why do they say that? We didn’t lose her, we knew where she was. Let me start again… 6 years ago this month, my sister died. She had been in intensive care for just over…

September 24, 2016

Epilepsy – The first fit

It was almost 3 weeks ago now, something happened that made Liam and I switch roles. Liam went in to blind panic mode and I stayed calm as he witnessed something I’d seen many times before. That evening our beautiful boy had a fit.…

July 20, 2016